So Adam is still resting well, on the ventilator, waiting for Monday.
He is relaxed, has piano music playing, and no signs of any complications.
The plan is still to let him attempt to breathe on Monday on his own (again in the OR so if any problems happen, help is nearby…).
If he is not able to again, they will place a tracheostomy.
The reason it is so hard for him to breathe is because he used to have such an open airway (severe cleft of the lip and basically absent nose) so a large amount of air could come in and go out with no problems. Now that the lip has been closed and its a very tiny mouth, comparatively, it will take some growing (as Adam grows, his mouth, trachea, oral cavity will grow) before Adam will have ease with breathing again.
The few cases of Bartsocas Papas that have been treated have needed tracheostomy care as well for a few years thru the first surgeries.
It was hard for us to hear (well, mainly me, mom) at first and yesterday was quite a difficult day in many ways.
But so redemptive on so many levels.
What Abba Father has done in and thru Adam so far has been truly incredible.
And we are just seeing the fringes of His garments…the fringes of His desire to receive glory thru this precious life we are caring for.
So in that I rest.
I met a dear friend, Brooke, this morning for coffee. She just returned from serving around the globe and had a neat experience at a home for children in South India. The girl she really fell in love with had been left in a bed in a hospital (After being abandoned at birth) for 4 years. She had not ever been held or stimulated. She was labeled “MR” (mentally retarded) since birth (as if that could be accurately assessed at birth) and is just now learning how to sit up, respond to touch, etc.
It reminded me of what Adam could have been if left in a hospital to be moved bed to bed as availability came.
To know Abba Father authored his life, his adoption, his medical care, his financial provision…so much that makes no sense to us. But it makes sense in His Kingdom and that is what we long for. And we are humbled to be seeing it unveiled before our lives day by day.
This passage from Job has been on my heart and mind this morning as I consider the displays of Abba’s glory we have seen thru Adam’s life. It kinda mirrors His glory in creation explained here:
“He spreads out the northern skies over empty space;
he suspends the earth over nothing.
He wraps up the waters in his clouds,
yet the clouds do not burst under their weight.
He covers the face of the full moon,
spreading his clouds over it.
He marks out the horizon on the face of the waters
for a boundary between light and darkness.
The pillars of the heavens quake,
aghast at his rebuke.
By his power he churned up the sea;
by his wisdom he cut Rahab to pieces.
By his breath the skies became fair;
his hand pierced the gliding serpent.
And these are but the outer fringe of his works;
how faint the whisper we hear of him!
Who then can understand the thunder of his power?”