I truly apologize for not doing a better day by day update on Adam.
I will try to be better.
It is just that- often times we do not have good internet here at the hospital and then I it is not the top of my priority list when we get back to our “home” in the evenings…when there is food around a table, people to laugh with and reflect on the day with, and my husband to debrief with.
But…Adam is doing well.
Today is his first day off the vent. They are giving him a trial run and he is doing superb. His lungs are clearly not the problem. That is what we keep being told;)
The plan is to change out his trach tube on Friday morning and revise his leg surgery a little bit.
Then, he is most likely to transfer to the normal peds floor by the weekend sometime.
Please pray for his continued healing to help him transition easier.
The Word and prayer…that is where healing comes from. It is true;)
Good news I forgot to share here:
1. Adam’s corneas are both in excellent shape! That was positive news after surgery last week. Thank you for constantly remembering to pray for his eyes. I believe they are truly being heard!
2. Adam’s palate (in his mouth) is in good shape. They were suspecting needing to do a total palate repair after some time. But he has a large portion of it intact. There may not even be a need for further surgeries on the palate! Time will tell:)
Thank you so much for all of your prayers and encouragement.
Now for some reflections…
Sarah says
aaahhhh…thank you for this good word! He, alone, is worthy of all of our devotion!!!
Paige says
Reading a post like this was worth the wait! Beautifully written and extremely thought provoking. Your little family of three has certainly changed my life for the better. It's easy to get lost in life and sit on the sidelines watching. Something about Adam's story lit a fire in me and now I feel like the song by Matthew West that says:
‘Cause just ok
Is not enough
Help me fight through the nothingness of life
I don’t wanna go through the motions
I don’t wanna go one more day
Without Your all consuming passion inside of me
I don’t wanna spend my whole life asking
What if I had given everything?'
I am so glad to read all of the good news! Of course I will continue to keep all of you in my prayers.
Instead of going through the motions
Kaylee says
Thank you for the update. Your lives are such an inspiration to others. Still praying for you and your family. God bless you all.
heavenminded living says
Thanks for this post. I am always trying to cling to "the moment", especially those with my son, and feel I can never stay in it long enough, never enjoy it "enough". Thanks for the reminder that it's ok that this life flies by because God is eternal. I need to remind myself of this every day=)
So glad to hear the good news about Adam!
Lydia says
Praying for you all, Jessica! Thank you for keeping an up-to-date blog about baby Adam. It has helped me so much to know how to pray and to tell others about him. (yes this is your cousin Lydia)