WE: Unformed

This little light of mine

So we have been discharged for 2 days now.
It is definitely a slow recovery.
But it is coming along;)
Adam has been outside once each day
And swinging on the swing set is certainly his therapy
I love walking these 2 to the park in their Radio Flyer wagon
We have a follow up appointment tomorrow with the main surgeon
Continued prayers for recovery and no fever and such welcomed;)
And one thing Adam is going to need is glasses (I know, so cute!, right?)
So prayers as we try to teach Adam to wear glasses and wisdom on what is best for him;)

So I have so many words in this heart of mine to share.
But, tonight, as I look thru pictures of this week..
I can only think of a few words from a song from my childhood
You may know it too;)
A little background that some of you may already know…
When Adam was born without eyelids, it was critical for him to get eyelid reconstruction to cover his eyes
His eyes needed to be moist and covered to preserve his vision
So at 12 weeks he finally got surgery;)
But once he had surgery, his eyes had heavy bandages for a while
They were almost completely covered with only a tiny slit at the bottom
So while that as important for eyelid and skin graft healing, we were told that without visual stimulation
Adam could lose his vision
So we needed the eyes shut to preserve vision
But they needed to be able to see, to preserve vision
So what to do?

Well, we strung up twinkle lights for all to see

And Adam would peep out of those little slits beneath the bandages to see the lights

And then, when his bandages came off for good..
And we caught THIS MOMENT on camera, it was truly miraculous;)

There are many things we do not understand about Adam’s condition and many questions we ask about his suffering, physically
But NEVER have I appreciated the gift of colors and lights as much as I do with Adam
Love this.
So as I have watched my boys this week and thought about Light…
This song comes to heart;)

This little light of mine.
I’m gonna let it shine
This little light of mine
I’m gonna let it shine….

Hide it under a bushel? 
No!
I’m gonna let it shine
Won’t let satan blow it out
I’m gonna let it shine
Let Him shine

                                                                  Let Him shine

Let it shine

Comments

  2. Moved deeply by your testimony of life and love. Praying for you and your precious family, trusting God's faithfulness in your life!

    Keep shining <3

  6. What a precious blessing! I was just introduced to your blog and LOVE your family so very much already. You shine Jesus so beautifully in the HARD. Thank you for loving as you do and keeping it real through it all! blessings from a Malaysian in Ohio

  8. We have entered a new era, where this defect grouping is not fatal! PTL for advancements in medicine & surgery for infants & children! PTL for the surgeon who decided he had to help! PTL for your instant love & connection bringing love & light into Adam's life! PTL for this example to the world!
    Someday, I would love to meet you all!
    Sue
    (A former NICU nurse)