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This little light of mine

September 4, 2013

So we have been discharged for 2 days now.
It is definitely a slow recovery.
But it is coming along;)
Adam has been outside once each day
And swinging on the swing set is certainly his therapy
I love walking these 2 to the park in their Radio Flyer wagon
We have a follow up appointment tomorrow with the main surgeon
Continued prayers for recovery and no fever and such welcomed;)
And one thing Adam is going to need is glasses (I know, so cute!, right?)
So prayers as we try to teach Adam to wear glasses and wisdom on what is best for him;)

So I have so many words in this heart of mine to share.
But, tonight, as I look thru pictures of this week..
I can only think of a few words from a song from my childhood
You may know it too;)
A little background that some of you may already know…
When Adam was born without eyelids, it was critical for him to get eyelid reconstruction to cover his eyes
His eyes needed to be moist and covered to preserve his vision
So at 12 weeks he finally got surgery;)
But once he had surgery, his eyes had heavy bandages for a while
They were almost completely covered with only a tiny slit at the bottom
So while that as important for eyelid and skin graft healing, we were told that without visual stimulation
Adam could lose his vision
So we needed the eyes shut to preserve vision
But they needed to be able to see, to preserve vision
So what to do?

Well, we strung up twinkle lights for all to see

And Adam would peep out of those little slits beneath the bandages to see the lights

And then, when his bandages came off for good..
And we caught THIS MOMENT on camera, it was truly miraculous;)

There are many things we do not understand about Adam’s condition and many questions we ask about his suffering, physically
But NEVER have I appreciated the gift of colors and lights as much as I do with Adam
Love this.
So as I have watched my boys this week and thought about Light…
This song comes to heart;)

This little light of mine.
I’m gonna let it shine
This little light of mine
I’m gonna let it shine….

Hide it under a bushel? 
No!
I’m gonna let it shine
Won’t let satan blow it out
I’m gonna let it shine
Let Him shine

                                                                  Let Him shine

Let it shine

Filed Under: Baby Adam's Journey, how to help, Life at the Raj Mahal

Comments

  1. Andi and Sheba Eicher says

    September 5, 2013 at 4:31 pm

    deeply moving. We are lifting you up to the Father of lights!

    with lots of love from India!

    – Andi, Sheba, Asha and Enoch Eicher

  2. Leah M. says

    September 5, 2013 at 4:31 pm

    Moved deeply by your testimony of life and love. Praying for you and your precious family, trusting God's faithfulness in your life!

    Keep shining <3

  3. Anonymous says

    October 15, 2013 at 10:31 am

    Your beautiful pictures moved me to tears. What a blessed and amazing family you have.

  4. Lanie Beth Sinclair says

    November 5, 2013 at 11:16 am

    Found your blog and have been weeping over your story. Happy tears and some sad ones too. We are praying for you guys in Locust Grove, Georgia!

    Brad, Lanie Beth, Rowan and Darby

  5. Sarah says

    November 5, 2013 at 11:16 am

    I've been following your blog for quite some time now, and today I noticed that a site on Facebook wrote about your story. Here's the link: http://www.jewsnews.co.il/2013/09/13/life-of-the-week-couple-adopts-baby-whom-others-called-a-curse/
    Continuing to pray for you!

  6. Gloria says

    November 5, 2013 at 11:16 am

    What a precious blessing! I was just introduced to your blog and LOVE your family so very much already. You shine Jesus so beautifully in the HARD. Thank you for loving as you do and keeping it real through it all! blessings from a Malaysian in Ohio

  7. Anonymous says

    November 5, 2013 at 11:16 am

    Love it. Wishing your son well from Ohio. ♡

  8. SueMayOnline says

    November 5, 2013 at 11:16 am

    We have entered a new era, where this defect grouping is not fatal! PTL for advancements in medicine & surgery for infants & children! PTL for the surgeon who decided he had to help! PTL for your instant love & connection bringing love & light into Adam's life! PTL for this example to the world!
    Someday, I would love to meet you all!
    Sue
    (A former NICU nurse)

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Wife to a shrink from the East.
Momma to 3 wild boys.
Nurse. Nomad. Friend.
Learning to live broken, yet brave.

Adam is a shadow chaser, high five giver, explorer, & overcomer. He joined our family thru adoption and has taught us a new way to see ever since. His unformed body revealed my unformed heart.
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My husband is a shrink turned seminarian who keeps me honest and laughing every day. We have 3 sons. We speak multiple languages but not clearly and we like dance parties but lack rhythm.
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