Before I get started…read yesterday’s post and if you are in the Jax area… Head to One Spark and vote for Adam today! I have learned things from our Adam that will surely echo in my heart and mind forevermore. His life in itself is a miracle and a gift. His laughter, I am sure, makes […]
Be One Spark!
So you may remember last year, when we shared about One Spark Jacksonville? Well it is taking place again THIS WEEKEND.It is happening right now and local artist, Scott Morphew, is featuring his piece in honor of Adam again.You can visit the website for the current One Spark festival HERE If you are in Jacksonville, […]
Prayers to Guide Us in Praying for a Child Battling a Diagnosis (Teach us to Pray, 2)
That was their request. “Lord, TEACH us to pray” The 12 that walked closest with our Savior in His time on earth. They communed with him all the day long, yet they knew there was something deeper. They knew that there was a fellowship beyond the meals shared and the parables heard. And so they […]
“Bringing Back Baby Adam”
We were grateful for an opportunity to share some of our story in UNC’s ENT winter publication.You can find Adam’s story by scrolling to the 4th page of the journal below.Thank you UNC for continuing to care for our Adam and so many others;)If you see in the top left of the box below a […]
Gift giving time
So as you all probably know, our internet is quite irregular these days.The reasons that we are given are endless and quite entertaining.“When it is cold the lines are difficult”“The man who flips the switch is on leave” (for 2 weeks)And I will stop there;) But alas, the weather has not gotten any colder, so […]
Kiss of Life Video
It has been a beautiful journey, these past 2 years with Adam.One of the most beautiful parts of it is all the people who have come alongside of us. Dr Van Aalst, the doctor behind it all;) and Scott Morphew, local Jax artist who made this masterpiece;) Jacksonville, Florida is my hometown and it has […]
On Snails and Perseverance
So Raja has been out of town for meetings and is heading back by train tonight.I surely do miss him;)So here is a picture in his honor;) a favorite picture of us from this summer; in St. Augustine at my brother’s wedding “It was by perseverance that the snail reached the ark” -spurgeon This, my […]
Specs.
You know on our wedding bulletin, we had this printed: “The Lord has done GREAT things for us and we are FILLED WITH JOY” (And surely he had done great things…but we had no idea all the goodness in store…) It is a psalm of david Earlier in the Psalm, he writes “our mouths were […]
September the 18th
Alright my dears. I wish I was as regular on here as I was during Story Time that stretched thru June, July, and August But, alas, I have not been. For that, I am sorry. For there is so much to share that I get a bit overwhelmed thinking about it. To be honest, just […]
On all this passing time
Life passes by and there is often time not a chance to jot it all down I try to store it up in my heart, as Mary did, but I wonder if I will remember it all? Because the Truth is, there is glory all around. There is glory in the mundane, the tragic, and […]
This little light of mine
So we have been discharged for 2 days now.It is definitely a slow recovery.But it is coming along;)Adam has been outside once each dayAnd swinging on the swing set is certainly his therapyI love walking these 2 to the park in their Radio Flyer wagonWe have a follow up appointment tomorrow with the main surgeonContinued […]
Discharged;)
Dear ones, We were discharged on Sunday and Adam is at home resting Please continue to pray against infection and for thorough healing and restoration of strength;) This is all for Adam’s surgeries for this year. We will continue to update you on how he does;) jess adam last night;) he loves elmo extreme.
Thoughts from my wandering heart
Adam health update: Keep praying. He is doing a little better. But there are still some signs of questionable infection that are still be looked into. Pray for wisdom for all treating and for his healing. This is disheartening to see him struggling when he has had such a great summer of health. I scribbled […]
How is Adam Doing?
Greeting you early on this humid North Carolina morning from our little hospital room. You know, there is something beautiful about waking up in North Carolina. I have always loved it, from days camping and staying in my aunt and uncle’s mountain cabin in Franklin, to summer camp days in Asheville, to these summer mornings […]
Prayer Request and (SOME of) Your Pictures
Thanks guys for all of your prayers. It has been an up and down week. But today, Adam spiked a high fever and had a pretty intense cough. […]
3rd day post op
So day 3 after surgery has been rough:( prayers welcomed;) Adam didn’t sleep well last night… Raja was up with him most of the night ( this was what I woke up to). Please pray against fever/infection and also pray against reflux from different medications that he is on. Pray for quick and fast healing and for strength and trust […]
Discharged and home
We were discharged yesterday (Saturday) evening Continued prayers for healthy recovery, no infection, and pain management are appreciated;) Love to you all adam has to wear restraints called “no no’s” on her arms to prevent him from sticking things in his mouth and opening up the sutures. he is so frustrated! this boy is happy […]
The Long Awaited Post;)
Dear ones, thank you for your patienceIt is nearly midnight.I (jess) have come home to rest while Raja sticks out the night with Adam Surgery went well.A lot of investigationsOne thing I wanted to share:How VERY excited and amazed the eye docs were with Adam’s eyesIt is truly a miracleHis eyes are in incredible shape […]
On Surgery (and how we can all be there together;)
So tomorrow at 730 am Adam goes in for a long surgery. At the minimum it will be 5 hours. Do be praying. They are estimating and budgeting for 1 day in the hospital and coming home by Saturday most likely. Since Adam has a trach, the airway is not an issue b/c the trach […]
On Surgeries and Giving and Thanks and Clarification
Dear all, Thank you for all that each of you have done. Truly thank you.Surgery is scheduled for Friday at 730 AM.That is wonderful. I want to again reiterate how grateful we are.I also want to share that though we are just at the amount needed for surgery…It is hard to predict complications, extra nights in […]
CAN I TELL YOU….
Surgery is Friday at 730 AM! “Dear ones… Drum roll please… Money is in! Surgeries are a go;) thank you to each and every one of you who gave. Truly thank you. I mean but if he gave us His son, how will He not also graciously give us All things???” Oh how Abba loves […]
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