WE: Unformed

the One of all comfort

 There have been many times since September 18th, 2011, that I have been led to deeper pits of questioning.Asking Him.Longing to understand.Why He allows suffering.Why He allows bartsocas papas.Why He permits babies to have no eyelids.Why? Why? Why?Why such injustice?I needed/need answers that are understandable to my finite mind.My temporary vision.My mourning heart.Just like His […]

poxed by chickens

So our Little Bird, Adam, has been out with the chicken pox for 3 days now. Do remember him in your talks with the One on High;) He is doing quite well…just crusted over in Calamine lotions, with an occasional need for Tylenol, and about twice a day spits up a bit of his feedings. […]

on earth as it is in heaven.

Those are the words my heart has been reciting the past few days since my last train ride with a friend, Amanda, to Delhi. More on that later though. It is a late night but I just want to say that all is well on the homefront. My hands are a bit tired at the […]

Videos of Adam;)

Adam and I have had some lovely mornings together recently (save yesterday when he got sick again…but he is on the mend;) Click on each of the following and you can enjoy 3 videos of Adam and his love for life;) 1. adam in the mornings (video one)…notice how he stops playing the piano when the music […]

journey on…

So this post is originally on our original family blog: http://soundsofthesun.wordpress.com Since our family is expanding…our journey is not solely “baby Adam’s journey”. So I am going to try to post reflective posts on our family site as well as general family updates. Then Adam updates will be on here. No fret though..many more people know […]

Moved in and Adam is ok

Hello all. So we just got internet at home and it is quite speedy;) But I have felt quite disconnected, acutely in these past 3 days because we have never felt such a desperate need for prayer and wanted to share with you all. We got to Herbertpur on Friday afternoon. Travel went well getting […]

on the journey back…

It is 1230am on Wednesday night here in Delhi, India.Jet lagged we are. We 3 slept 6 hours this afternoon, and are therefore wide awake now.The plane journey went well…so much favor from Him above was showered on us.All is grace and for that we are thankful.We had to check 9 bags and 90% of […]

That didn’t go well…

Hello all you who still stay tuned here:) I clearly did not follow thru very well in updating this more often. All I can say is we are pretty much consumed with packing and organizing all of Adam’sedical supplies and other items to be able to be taken to India.  We are grateful for your support […]

swallow test SUCCESS

we are rejoicing this week! Adam’s swallow test went smoothly and with ease! Thank you all for your prayers and encouragement! He sat up in that little chair and swallowed everything they put in his mouth! We have now fed him some baby bananas and pears as well as bottle fed formula…he did not love […]

swallow test

at 8am Adam is going in for a “swallow test”…if he passes he can progress to eat foods by mouth (baby foods, oatmeal, etc). this would be a huge blessing…it would keep him fuller longer, he would taste, and many other good things. please lift up his little mouth and esophagus;)

tomorrow

Hello all. Just to notify: Tomorrow at 2pm Adam will go under anesthesia to have all the sutures and dressings removed from his surgery last week. They will also take out his broviac line (IV line that has been in place since November). Also, the eye doctors will take a look at his eyes. Last […]

stories of Him, not us.

So it is Wednesday evening. The heat of the day was quenched by an afternoon rain that has cooled down this North Carolina home. Adam is discharged! Yes, that is right, he is out of the hospital and back at our home in Chapel Hill;) He is doing quite well, swinging happily in his swing, […]

Adam Update

Adam is out of surgery and is doing well. He will be in the hospital for a couple of days. More to come. Thank you for your continued prayers!

surgery tomorrow

These are some fun family pictures from the last lil bit in Florida. We are back in Chapel Hill this evening. Tomorrow at 730 am, Adam is having the little cyst on his forehead removed.  It should be a 5 hour or so surgery.  Please lift the little one up. We put our trust in […]

MRI and ‘ no longer the baby!’

Thank you all for your encouragement and prayers for the MRI. Good news: the cyst is not extended into the brain. VERY GOOD. It is just superficial and will be removed completely on this Tuesday, the 3rd. Please continue to pray for that;) Also: A new one on the way;) Adam could not handle another […]

why it has been so long

Update: We do not have results of MRI yet, since it finished near the end of the work day on Friday. BUT we know that surgery is scheduled for April 3rd.  They will remove the cyst then and we will hope and pray for a quick recovery. For our return ticket to India is May […]

Thursday morning

It is a a glorious Thursday morning.The sun in Jacksonville is piercing the atmosphere and setting aglow this coastal city.A delicious breakfast of grits, eggs, and cinnamon raisin toast has been consumed.Adam is sleeping.Dad is packing.Mom is sharing. We just found out 2 days back that we have to get back to Chapel Hill for […]

it has been a while….

Hello to all. Mom Jessica here… I just wanted to share that we are all doing well. We are in Florida enjoying family and friends for a few weeks. We will be back in Chapel Hill on April 5th for appointments and an MRI to look at the cyst on Adam’s forehead. After that, the […]

discharge and some reflections

We are out of the hospital! We have been discharged since Thursday night, we just have not had a free moment to take the effort to share it on this site, and I am so sorry for that. Adam is doing well. He definitely lost some weight during these past 21 days in the hospital […]