WE: Unformed

A few updates

First of all, a reminder of the amazing book that is now being sold for Adam: Adam the Elephant!!! Just to refresh you, a dear friend of ours in Jacksonville, Jennifer Norton, and her son, Daniel Norton, wrote the book and hand painted each of the pages. It is a beautiful story that speaks of Truth […]

friday friday

So Adam had a bit more time in the OR this morning. It ended up being about 1.5 hours I think. Basically, they had to revise the sutures on his leg incisions from the 14th surgery. All went well. He is off the ventilator (has been for 2 days) and just has a little oxygen […]

how ever is he?

I truly apologize for not doing a better day by day update on Adam.I will try to be better.It is just that- often times we do not have good internet here at the hospital and then I it is not the top of my priority list when we get back to our “home” in the […]

check in

So Adam is still resting well, on the ventilator, waiting for Monday. He is relaxed, has piano music playing, and no signs of any complications. The plan is still to let him attempt to breathe on Monday on his own (again in the OR so if any problems happen, help is nearby…). If he is […]

about the intubation…

update: extubation did not go as well as expected. Due to the new closure of his previously very open face, his mouth and airway are a lot smaller and were too difficult for Adam to breathe thru. They struggled to reintubate him (put a breathing tube back in) but did finally get the breathing tube back in […]

Adam’s progress

I realize I did not post yesterday, and I am sorry. Adam is continuing to recover well. Swelling is going down and he is increasing in his frustration of having so many tubes attached to him. They plan to extubate (which means remove the breathing tube) this morning. He has been on breathing tubes/ventilator since […]

valentines day update

Hey there. Surgery is over. 8.5 hours long;) Adam did well. He will be in the PICU tonight. We are waiting for the nurse to take us back to see him. Thank you so much for your prayers. A local news station ran this today…. http://abclocal.go.com/wtvd/video?id=8543877 Thank you all for your prayers throughout the day…

a new lip for new kisses on valentines day!

“Then it was said among the nations, ‘the Lord has done great things for them!’  The Lord has done great things for us and we are FILLED WITH JOY” david’s 126th chapter. verses 2 &3 I spent some time today remembering… Adam’s first night home…his typical position…you can see the absence of eyelids look how […]

In Him there is no darkness at all.

First of all: The BOOKS ARE PRINTED! “Adam the Elephant” has been printed. We have 1000 copies to sell and distribute. We would love for you to have one! For out of towners..there is a way to purchase on eBay below: http://www.ebay.com/itm/Adam-Elephant-/170781159724?pt=US_Childrens_Books&hash=item27c359b12c#ht_1266wt_72 If you live in Jacksonville, Tallahassee, or Chapel Hill, we have ways to […]

just so you know;)

Feb 14th, a day we earth dwellers mark as a day for love, our baby boy is getting his cleft lip repaired. He will also be having some operations done on his legs. Please petition that he can be well rested and ready for surgery and that Divine hands guide each surgeon and other involved […]

adam’s first laugh!

Today was an exciting day for us…Adam reveled in a moment with his dad in the waiting room of the clinic.And he chuckled for a good 60 seconds or so. I wish each of you had been there to see all the exclamations and laughs around the room in response!Brooke, Lori, Savannah, Raja, and I […]

no event too common place for His glory to not be seen.

“There is no event so common place but that God is present within it,  always hidden, always leaving you room to recognize Him or not to recognize Him.” (Fredrick Buechner) This season of life has definitely been one where we have nearly drowned in His holiness and His glory. What a tragedy it would be […]

who’s a ‘beta’?

Is this not a beautiful picture? For those of you who have seen my son, our son, Adam, he did not have eyelids the first 10, maybe 12, weeks of his life. It has led to a total of 6? surgeries where amazing doctors and specialist surgeons have attempted to create eyelids. And even moreso, […]

thankful

“We thank You, God, we thank You— Your Name is our favorite word” Psalm 75:1thankful today. adam’s eyelids look better than they ever have before. and we can see his little eye muscles twitching. continue to pray! He is good and is at work weaving this little body back together!

another day

Thank you to those of you who continue to read this. For we are surely still in just the beginning of Adam’s journey and treasure each of you on it with us. Truly. I would like to request some specific prayer requests for Adam:1. Most of you are aware of the fact that last week […]

1st day post op

Hello to all. It is 11pm on Wed night. I (Jessica) am back at our home resting because my precious, loving, and handsome;) husband has sent me back 2 nights in a row to rest with my dear momma. That means sleepless nights for him at the hospital. Humbles me to be loved like that… […]

out of surgery

(Jessica here) Adam is out of surgery. Everything has been reported to have gone well. His eyes will be patched up for a few days and Friday they will plan to remove stitches placed. Raja is with him now and I will switch with him shortly. He will be admitted for a few days most […]

Little Bird

Here is the song of the day for Adam;) Shout out to Rebecca Senior;) He is going into surgery as I type. No major complications..the surgery was just moved early in order for all the surgeons to be able to participate. The operation is fixing the eyelids, which have turned “inside out” a little bit. […]

“chart and compass come from Thee, Savior pilot me”

Update on appts: We met with ophthalmology, plastic surgery, and pediatric surgery on Tuesday. A day full of pretty good reports;) Cornea’s look well, eyelid may need a revision in February, skin above eyes has healed well, and feeding tube was replaced in Adam’s stomach. Thank you so much for your prayers. Plans still remain for […]